Wednesday, December 9, 2009

Since my last post I've been searching the internet night and day about PANDAS. I finally did find a doctor to help us at Nemours. We can't get in until Feb. 22nd. I've been calling everyday to see if anyone has canceled an appt. I'm trying to get our pediatrician to call and get us in sooner. Monday was a good day for Bray. He did everything on his own without having to be told over and over or me having to do it for him. Then came yesterday. He woke up in his usual mood and I couldn't do anything with him. The tics and OCD has been really bad this past month. I thought we was past all this. All I can figure out is that the year we had Bray on the diet, he was healthier and didn't get sick. So I'm guessing it didn't trigger the PANDAS and the behaviors stopped. Since the whole infection with his CI he's been worse than ever. The doctor at Nemours needs to see him now while he's doing all these behaviors. If they wait til Feb to see him they are liable to be gone by then and we'll be back where we started. It's been frustrating to say the least. Bray couldn't work at speech yesterday b/c of the compulsions, inability to sit still, and the "hooting" and clearing his throat tic. I couldn't control him, couldn't get him to calm down. I don't know what to do. I'll continue calling doctors and trying to get him in as soon as possible. Please keep my family in your prayers. I'll post as positive things happen. No sense to post on all the negative. :(

We have an appt. with the Atlanta Speech School this Friday. We'll be leaving on Thursday. I'll post on that trip when we get back.

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